A personal exploration of oral health in amyotrophic lateral sclerosis

Amyotrophic lateral sclerosis is a progressive neurodegenerative disease impairing motor functions, including those of the oral muscles. As a result, oral hygiene and oral care become challenging. Nonetheless, oral health in patients with amyotrophic lateral sclerosis often remains under-addressed. On the basis of interviews with Dr M.K.A. van Selms – dental researcher and patient – oral health in amyotrophic lateral sclerosis was explored, highlighting care, research and education. Dr van Selms identifies the neglect of oral hygiene in the care of patients with amyotrophic lateral sclerosis, and advocates for patient-informed, functionally tailored guidelines, interdisciplinary collaboration, and improved access to dental services. He also calls for ethically sensitive, patient-centred research; he stresses the relevance of inclusive training for all involved; and recommends developing instructional material for carers and patients. Dr van Selms’ unique perspective reveals the necessity to integrate oral health into the care for this patient group and offers starting points for improving oral health and quality of life in amyotrophic lateral sclerosis and similar diseases.